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Children's Tumor Foundation, The (CTF)

*Provides accurate and current information regarding neurofibromatosis and the three distinct vartiations: NF1, NF2, and Schwannomatosis to patients, families and medical field *Offers an online healthcare provider directory of doctors who specialize in neurofibromatosis and the three distinct vartiations: NF1, NF2, and Schwannomatosis linked to the NF Collective *Manages the NF Registry website where people with NF fill out an anonymized survey about symptoms and experiences on a yearly basis to assist with research and education; join on the website *In partnership witih Indiana Univerisy CTF manages a Human tissue biobank of NF1, NF2, and schwannomatosis tissue samples; link on website to reqest access for research or to donate *Holds an annual no-cost summer camp for teens and young adults ages 12 to 21 living with neurofibromatosis (NF) third or fourth week of July (6 nights/6 days) in Salt Lake City, Utah

Services: Camps, Disease/Disability Registries, General Health Education Programs, Health Care Referrals, Organ and Tissue Banks

132 E. 43rd Street

Suite 418

New York, NY 10017

CSL Plasma

*Plasma donors compensated for their time and can earn up to $400 per month; fees vary by weight *Plasma needed for treating patients suffering from many life-threatening conditions *Wait times may vary; generally the collection procedure takes 30-60 minutes *Persons wanting to donate must bring photo ID, proof of Social Security number and proof of address within the past 30 days *Donors must live within 50 miles of Tallahassee

Services: Plasma Donation Centers/Drives

2525 S Monroe St, Ste 18-B

Tallahassee, FL 32301

(850) 583-7797

Grifols, Biomat Plasma Donation Center

*Plasma donation center that pays persons who donate *Plasma is needed for treating patients suffering from many life-threatening conditions *At least two donations are required; the plasma can not be used without the second donation *People may donate up to twice per week with 48 hours in between donations *Donations take about 90 minutes, except the first time takes 2+ hours *Eligibility: Adult age 18-69, must weigh at least 110 pounds and in generally good health *Required documents: photo ID, proof of social security number, proof of address *Appointments not given, takes walk-ins only; call during holidays to check hours open

Services: Plasma Donation Centers/Drives

1950 W Tennessee St

Tallahassee, FL 32304

(850) 222-0195

National Marrow Donor Program

*Offers patients who do not have suitable family donors a single point of access for all three types of stem cell use in transplantation: marrow, peripheral blood, and umbilical cord blood to combat leukemia, aplastic anemia, and various other immune system, genetic disorders, blood cancers, and blood disorders *Manages large registry of volunteer donors, including cord blood units; matches donors to patients; offers information about how to become a marrow or cord blood donor *Provides support for patients, physicians and studies for improving outcomes of stem cell transplants and innovative stem cell therapies; and maintains a free online directory with personalized searches for clinical trials and support for blood cancers and blood disorders

Services: Blood Banks, Bone Marrow Donation Registries, Clinical Trials, Cord Blood Banks

500 N 5th St

Minneapolis, MN 55401

(800) 627-7692

One Blood, Inc

*Big Bend area's primary blood donor center serving Tallahassee and surrounding areas and South Georgia *Persons wanting to donate blood can make an appointment by phone or on-line *No walk-in's *Bloodmobile often available for visits to various locations around the area

Services: Blood Banks

1731 Riggins Rd

Tallahassee, FL 32308

(850) 877-7181

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