National Organization for Rare Disorders, Inc

Address

55 Kenosia Ave
Danbury, CT 06810

(203) 744-0100

http://www.rarediseases.org

AKA:

NORD

Description:

*NORD: federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting organizations that serve them
*Information and resources for doctors, insurance, financial help, clinical trials and connection with others suffering from same disease
*Provides advocacy and information about support groups
*Administers medication assistance programs to help uninsured or under-insured individuals in securing life-saving or life-sustaining medications

Intake Process:

Call

Program Fees:

None

Languages:

English

Eligibility:

Individuals or families having a rare disease, may have no health insurance or are under-insured

Is Shelter?

No

Related Resource

Date of Official Change:

June 14, 2024

Geographies Served

  • Serves All Areas

Address Listings

Mailing

PO Box 1968
Danbury, CT 06813-1968

Physical (Primary)

55 Kenosia Ave
Danbury, CT 06810

Contacts

Mary Dunkle

Primary Contact

Senior Advisor

orphan@rarediseases.org

Phone Numbers

1. Main Number

(203) 744-0100

2. Patient Services Representatives

(800) 999-6673

3. TDD/TTY

(203) 797-9590

Description

*Information and resources for doctors, insurance, financial help, clinical trials and connection with others suffering from same disease

Hours

9am-5pm, M-F

Required Documents

Call

Eligibility

Individuals or families having a rare disease, may have no health insurance or are under-insured

Fees

Call

Intake Procedure

Call or contact on-line

Languages

English

Service Area

All Areas

Geography Served

    If a location is grayed out it means that only certain areas within it are covered. The areas with complete covereage are listed in black.

    Serves all areas

Edit Service DetailsClick here to see this service (LT-1530) and related services within the Service Tree.

Description

*NORD: federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting organizations that serve them *Information and resources for doctors, insurance, financial help, clinical trials and connection with others suffering from same disease *Provides advocacy and information about support groups *Administers medication assistance programs to help uninsured or under-insured individuals in securing life-saving or life-sustaining medications

Hours

9am-5pm, M-F

Required Documents

Call

Eligibility

Individuals or families having a rare disease, may have no health insurance or are under-insured

Fees

Call

Intake Procedure

Call or contact on-line

Languages

English

Service Area

All Areas

Geography Served

    If a location is grayed out it means that only certain areas within it are covered. The areas with complete covereage are listed in black.

    Serves all areas

Edit Service DetailsClick here to see this service (TJ-3200.5000) and related services within the Service Tree.

Description

*Administers medication assistance programs to help uninsured or under-insured individuals in securing life-saving or life-sustaining medications

Hours

9am-5pm, M-F

Required Documents

Call

Eligibility

Individuals or families having a rare disease, may have no health insurance or are under-insured

Fees

Call

Intake Procedure

Call or contact on-line

Languages

English

Service Area

All Areas

Geography Served

    If a location is grayed out it means that only certain areas within it are covered. The areas with complete covereage are listed in black.

    Serves all areas

Edit Service DetailsClick here to see this service (LH-5100.6500) and related services within the Service Tree.

Send profile information to an email address.

Provide your email address to receive information about National Organization for Rare Disorders, Inc.

Sent!

Please enter a valid email address.

Close this field

Send a condensed resource profile to your phone via text message (SMS).

Select your cell carrier and provide your phone number to receive information about National Organization for Rare Disorders, Inc.

Sent!

Please enter a valid phone number.

Please select a carrier.

Standard text messaging rates may apply from your carrier. Some mobile carriers are inconsistent in their delivery of provider profiles sent to phones. If you do not receive a message within a few minutes please contact the provider directly for assistance.

Close this field

Want to save this page for later?
Create a free account!

.